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Publications by our Team
Insights and publications by our team members that created the foundation for MiRare
01
Rare Disease Innovator Briefings
02
PROMs in Rare Diseases
Book chapter co-authored with health economists specialised in rare diseases, addressing the need to include patient reported outcome measures (PROMs) as early as possible in clinical development
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03
Digital health briefings
Analysis of digital health solution development for rare diseases that also addresses the evidence requirements for regulatory and reimbursement approval across agencies
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04
Stakeholder liaison
Addressing total stakeholder need in caring for patients with rare diseases, represents the cornerstone of effective support, healthcare implementation and sustainability of innovation. Two editorials were written by MiRare team members
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